Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Thursday, April 26, 2012

Joan of Art


Organized religion is not for me.  It’s not the God thing, it’s the people thing.  It seems to me that human beings have just made a mess out of religion.  Don’t get me wrong, I’m not against people who go to church, temple, etc.  I’m actually very interested in religions, large and small, and have been studying them for over thirty years.  It’s just that I, like a lot of other anti-Status Quo, free spirited people I know, am not much of a joiner, and could never choose one religion over another in order to fence myself in spiritually.  One over the other?  I don’t get that.    My spirituality has evolved and changed as I have evolved and changed.  It’s personal and simple.  My philosophy?  Leave the world better than you find it.  That’s my religion and that’s what I teach my kids.

What has guided me all of my life, in the absence of organized religion, is what I call my inner Joan of Art voice, the “still, small voice” within that always knows what to do.  I have listened, and relied upon, this voice all of my life.  As a small child, I trusted that voice when I couldn’t trust the adults in my life.  I escaped into my own world and expressed myself freely with my art. When I was being creative, I was safe and in control.   Music, art, humor, and my curiosity of anything outside of the norm are what sustained me through my teen years.  As a young adult, I took a leap of faith and jumped out into the great, wide open, and found my way with the same music, art, humor, appreciation for anything outside of the mainstream, and the written word.  I had started writing.

Then I became a mom. I love my kids!  I love all kids.  Kids are all artists – naturally inquisitive, uninhibited, trusting, and one with the moment. They make me laugh.  When I started teaching art to young children, laughter took on a whole new dimension as I got to be a big goof with them.  From that, art and teaching led me into my activism, a natural continuum and expansion of my creativity, and a challenge to my rebellious nature.  

My Joan of Art voice has guided me through every stage, impasse, and crisis throughout my life.

When I got cancer, I was scared to death.  I felt so lost.  For the first time in my life, I couldn’t hear my Joan of Art voice.  “Even if I survive the cancer, I am as good as dead without Joan of Art,” I would say to myself.  I didn’t know what to do.

Then I decided that if I could not hear Joan of Art, I could at least remember Joan of Art.  So I went through the motions, and started writing, drawing, and painting, whether I felt inspired or not.  In time, I laughed. That laughter reconnected me to that voice and I found myself again.  Once I had myself back, I knew I was going to be OK, no matter what the outcome.  The only way I could find myself, after losing myself, was by making art.

Listening to music, painting, drawing, laughing, reading great literature and writing are what has kept me going and helped me make sense of this whole crazy cancer ordeal.  By staying creative, I keep connected to God, The Source, The Divine, a Higher Power, or whatever you want to call it.  Making and appreciating art is my daily practice.  That’s how I stay regular…..by being creative every day.  A dose of art is like getting a spiritual chiropractic adjustment.  Creativity is what straightens me out and puts me back on track.  

Artists, even though most people don’t stop to think about it, are who make the daily grind for the masses more bearable, interesting, or meaningful.  Whenever people stop to appreciate music, art, humor, or literature, they are getting a spiritual chiropractic adjustment, whether they are conscious of it or not.  

Joan of Art has spoken.  And she did not leave the building!  Phew!

Saturday, February 11, 2012

The Best Candy Playlist

I've been receiving chemotherapy for Stage 3 Breast Cancer for seven weeks now and I'm happy to report that my body is responding to the treatment really, really well. It's rough, though, and I'd say that I've been pretty useless for half of those seven weeks, because the side effects of chemo are pretty debilitating. There is nothing I can do but ride it out.

What has helped me endure all of this is MUSIC! I have loved music all of my life, and have made it a priority that kids in our schools continue to participate in our orchestra and band programs, produced through the Children's Music Workshop, in spite of the recession, because frankly, music saves lives.

What has kept me going for the past few years, as I try and keep my and my nonprofit's heads above water, are those precious kids whose lives have literally been turned around by being able to play in the school band or orchestra. Some of the kids who have benefited come from homes where they have witnessed unspeakable acts of violence and cruelty. I think of these kids whenever the Status Quo has suggested that my, and many other small arts education nonprofits, are well meaning, but that our efforts are small in comparison to theirs. Whenever I have been insulted like this, I think of our kids. Knowing that a few kids' lives have been changed for the better is good enough for me. I don't need, or want, the Status Quo's approval.

After all it's boasting and bullying, the Status Quo has announced that it will cut 100% of its elementary arts programming, which it has been bragging about for the past ten years!!! I'm not at all surprised by this news, but I am disgusted. The kids and the arts lose again, yet the Status Quo lives on.

I can't get too worked up about this, because I need to focus on staying positive for myself so I can keep up the good fight to beat breast cancer. The stress of trying to stay afloat during the recession, and keeping the Status Quo as far away from me and my nonprofit as possible, has taken its toll.

But the music plays on! Arts in Education Aid Council has managed to keep our band and orchestra program going in two schools in the Valley, and I'm very proud of that (all I had to do was find the money to pay for it, the Children's Music Workshop, under the direction of Larry Newman, does all the work). We have received grants from the ASCAP Foundation and the Colburn Foundation for this program and are waiting to hear about another music grant in a month or so. That makes me really happy.

What else makes me really happy is my own, personal sound track that I created, just to help me get through this tough time in my life. I call this playlist, "Best Candy", inspired by my nine year old daughter's desire to change "breast cancer" to "best candy" because breast cancer sounds so creepy and scary (she is the writer in the family!) On my Best Candy playlist is every song that I love so much that it makes me want to stop whatever I am doing, turn it up, and dance. I listen to this playlist every time I get chemo and while I take my daily two mile walks. What happens to me while I listen to my favorite music, is so good, so permeating, so strong, and so joyful, that I know I am being healed in that very moment. I have always felt this way about music, and now I am living proof (pun intended) that music heals. I know it, all musicians and music lovers know it, music educators know it, and music students know it. It's too bad the Status Quo doesn't know it.